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Charity Details

 

Charity Details:

SEDSConnective

SC054110Registered charity from 04 April 2025
Downloads the charity’s registration logos
2MB ZIP file, with green, blue and mono style logos
The Name the Charity is Known By SEDS
Address Planet House
North Heath Lane Industrial Estate
Horsham
Postcode RH125QE
Website www.sedsconnective.org
Regulatory Type Standard
Object:
The object of the CIO, to be carried out for the public benefit primarily in Sussex, the surrounding areas and beyond, as the trustees see fit, is: To relieve the needs of people (and their families and or their carers) living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD) or symptomatic hypermobility, neurodivergent conditions and any associated conditions or symptoms, in particular but not exclusively, by: a) providing advice, information and peer support as well as funding for activities, support services and equipment; and b) advancing the education of the public and allied professionals by raising awareness of the above conditions; For the purpose of this clause “neurodivergent conditions” include, but not exclusively, Autism, Attention Deficit Hyperactivity Disorder (ADHD), Dyspraxia and Tourette’s Syndrome. “Associated conditions or symptoms” include, but are not limited to, fibromyalgia, M.E/CFS (Chronic Fatigue Syndrome), Allergies and Postural Tachycardia Syndrome (POTS).
Details of the charity's operations
Charity Status: Active
Last Updated: 01 Jun 2025
Constitutional Form: CIO (Charitable Incorporated Organisation, E&W)
Constitutional Form Date: 04 Apr 2025
Geographical Spread: Scotland and other parts of the UK
Main Operating Location: Outwith Scotland
Purposes: "the advancement of education","the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"
Beneficiaries: "People with disabilities or health problems"
Types of activity undertaken: "It carries out activities or services itself"
Information on details of charity trustees

OSCR does not keep a register of Scottish Charity Trustees. This is not one of our statutory functions or something that we are resourced to do. Information about Scottish Charities should be available from the trustees' report of the charity's annual accounts. Please contact the charity directly using the above search to find this information

© Office of the Scottish Charity Regulator 2006. Crown Database Right 2006.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

Open Government Licence logo

When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

From April 2016 we began to publish charities’ accounts, initially for those charities with an annual income of £25,000 or more, and for all SCIOs.

When a charity publishes its accounts on its website and has supplied us with a link, we have made this available. From late 2017, where the charity is a company, a registered social landlord or is also registered with the Charity Commission for England and Wales, a link is provided to the relevant regulator’s website where the accounts are made available. We accept no responsibility for the functionality, accuracy, or content of external websites – if you experience a technical issue with an external link, you should contact the charity directly.

You have the right to the following information under section 23 (1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, from the charity direct:

  • a copy of the charity’s latest statement of accounts
  • a copy of the charity’s constitution.

In addition to the above, a charity may also be able to provide you with previous years’ accounts and constitutions, although it is not obliged to do so. You can contact the charity to request this information using the contact details on the charity’s Register entry.

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