Charity Details

The Ehlers-Danlos Support UK

SC046712Registered charity from 13 July 2016

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Charity Information:

The Name the Charity is Known By EDS UK

Address International House
45-55 Commercial Street
London

Postcode E1 6BD

Website www.ehlers-danlos.org

Parent Charity Name Ehlers-Danlos Support UK

Parent Charity Registration Number 1157027

Regulatory Type Cross-Border

Link to Companies House https://beta.companieshouse.gov.uk/

Object:

The Objects of the Charity are: 1. primarily for the relief of persons suffering from Ehlers-Danios Syndrome through the provision of support, education and practical advice; and 2. to advance medical research into the cause, cure, prevention or relief of the syndrome and that useful results of such research are placed in the public domain.

Operations:

Charity Status: Active

Constitutional Form: Company (the charity is registered with Companies House)

Constitutional Form Date: 13 Jul 2016

Main Operating Location: Outwith Scotland

Number of Staff: 5

Purposes: "the advancement of education", "the advancement of health", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"

Beneficiaries: "People with disabilities or health problems"

Types Of Activity Undertaken: "It carries out activities or services itself"

Annual Submissions:

Year End	Income	Expenditure	Annual Return Received	Accounts Received	Latest Annual Reports and Accounts
31 Mar 2022	£483,707	£496,337	23 Dec 2022	Yes
31 Mar 2023	£423,719	£537,080	19 Dec 2023	Yes
31 Mar 2024	£380,301	£428,558	23 Dec 2024	Yes
31 Mar 2025	£434,770	£392,489	15 Dec 2025	Yes	Published accounts can be found on the Charity Commission website
31 Mar 2026			No	Annual Information due by 31 Dec 2026
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green . If an annual return is late, the box is red .

Income and Expenditure:

Charity Trustees:

First Name	Last Name
Charlotte	Williams
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises. If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

First Name

Last Name

Charlotte

Williams

From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

The Scottish Charity Register contains key information about a charity’s operations and finances. This includes:

the names of a charity’s trustees (exemptions apply)
its annual report and full accounts, if submitted after 9 March 2026
(Accounts submitted prior to 9 March 2026 will be redacted, or may not be published, depending on the charity’s income level or legal form.)

These changes are designed to improve transparency across the charity sector in Scotland.

Please note that we accept no responsibility for the functionality, accuracy, or content of external websites. If you experience a technical issue with an external link, you should contact the charity directly.

Under section 23(1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, you have the right to request the following information directly from the charity:

a copy of the charity’s latest statement of accounts
a copy of the charity’s constitution

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