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Charity Details

 

Pachyonychia Congenita Project Europe

SC046480Registered charity from 15 April 2016
2MB ZIP file, with green, blue and mono style logos
2MB ZIP file, with green, blue and mono style logos
Information about this charity:
Charity Information Operations Annual Submissions Income and Expenditure Charity Trustees
Charity Information:
The Name the Charity is Known By PC Project Europe / Pachyonychia Congenita Project / PC Project
Address c/o Robyn Hickerson
Flat 12 2a Elm Street
Dundee
Postcode DD2 2AY
Website www.pachyonychia.org
Parent Charity Name Pachyonychia Congenita Project
Parent Charity Country of Registration Other
Regulatory Type Standard
Object:
The organisation's purposes are: To advance education and health by: (a) promoting the study of pachyonychia congenita and improving the standard of knowledge of the means of prevention, diagnosis and treatment of pachyonychia congenita; (b) initiating, encouraging, supporting (whether financially or otherwise) and carrying out research and investigations into pachyonychia congenita and the treatment or cure of pachyonychia congenita and related disorders; (c) providing access to genetic testing and registration in respect of pachyonychia congenita and other rare genetic diseases; (d) organising and encouraging a community of professionals including physicians and scientists to collaborate in efforts to find effective treatments for pachyonychia congenita and related disorders. To relieve those in need due to ill health through the provision of care, support and practical assistance to sufferers of pachyonychia congenita and related disorders and assisting sufferers of pachyonychia congenita and related disorders to live better, more fulfilled lives through the facilitation of a range of initiatives including those directed towards social inclusion.
Operations:
What the charity is set up to do and how it does this:
PC Project Europe connects patients, researchers, physicians, and industry partners to help those who suffer from the debilitating effects of PC. We are a subsidiary of our parent company the PC Project, based in the United States. We engage with patients and professionals, offer support to patients and their loved ones, and partner with scientists and industry to advance PC research and drug development. We also engage in fundraising activities to support these activities. Pachyonychia Congenita is one of nearly 7,000 rare diseases, 2,000–3,000 of which are rare genetic skin diseases. Together with the PC Project and with the work of our international consortium of professionals, the participation of genetically confirmed patients in our registry, and the support of many givers, we have helped educate the world about PC and are on the path to effective treatments for patients.
Charity Status: Active
Constitutional Form: SCIO (Scottish Charitable Incorporated Organisation)
Constitutional Form Date: 15 Apr 2016
Main Operating Location: Glasgow City
Number of Staff: 0
Number of Volunteers: 1-50
Purposes: "the advancement of education", "the advancement of health", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"
Beneficiaries: "People with disabilities or health problems"
Types Of Activity Undertaken: "It makes grants, donations, loans, gifts or pensions to individuals", "It makes grants, donations or gifts to organisations", "It carries out activities or services itself"
Annual Submissions:
Year End Income Expenditure Annual Return Received Accounts Received Latest Annual Reports and Accounts
30 Apr 2022 £7,349 £216 27 Jan 2023 Yes
30 Apr 2023 £18,735 £306 21 Jan 2024 Yes
30 Apr 2024 £6,515 £6,483 21 Jan 2025 Yes
30 Apr 2025 £16,605 £54,547 18 Jan 2026 Yes Download
30 Apr 2026 No Annual Information due by 31 Jan 2027
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green   . If an annual return is late, the box is red   .
Income and Expenditure:
Charity Trustees:
First Name Last Name
Julie Peconi
Thomas Baker
Claudia Avella-Garcia
Philip Gard
Janice Schwartz
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.
Copyright

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

© Office of the Scottish Charity Regulator 2006. Crown Database Right 2006.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

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When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

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