Charity Details

Cerebrospinal Fluid Leak Association

SC046319Registered charity from 05 February 2016

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Charity Information:

The Name the Charity is Known By CSF Leak Association, CSF Leak Association (Scotland)

Address Clyde Offices
2nd Floor
48 West George Street
Glasgow

Postcode G2 1BP

Website www.csfleak.uk

Regulatory Type Standard

Object:

To raise the profile and promote awareness of Cerebrospinal Fluid Leaks (with a particular focus on spinal Cerebrospinal Fluid Leaks), hereafter within these purposes referred to as 'CSF Leaks', in all areas of society, including the general public, the media and the medical profession, for the public benefit; To improve, for the public benefit, the general availability of and access to information and resources relating to the causes, symptoms, diagnosis and treatment of CSF Leaks; To advance, for the public benefit, understanding of the causes, symptoms, diagnosis and treatment of CSF Leaks through research, education, fora, publications, practical advice, and other appropriate means and services; To campaign for, encourage and support positive change and advancements within government, the four national health services within the UK, other relevant health care providers (including those outwith the UK), other relevant organisations and general society that address the various issues faced by people suffering or suspected to be suffering from CSF Leaks, their families and supporters; To work to support and improve the availability of and access to investigatory tests and treatments required by people suffering or suspected to be suffering from CSF Leaks; To encourage and support the establishment, development and furtherance of organisations and initiatives the aim(s) of which are to a) undertake and/or facilitate research into CSF Leaks (incl. their underlying causes and resultant effects) and/or b) support people suffering or suspected to be suffering from CSF Leaks, their families and supporters; The promotion of such other similar charitable purposes as may from time to time be determined;

Operations:

What the charity is set up to do and how it does this:

We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free from harm.

Charity Status: Active

Constitutional Form: SCIO (Scottish Charitable Incorporated Organisation)

Constitutional Form Date: 05 Feb 2016

Main Operating Location: Highland

Number of Staff: 0

Number of Volunteers: 1-50

Purposes: "the advancement of health"

Beneficiaries: "People with disabilities or health problems"

Types Of Activity Undertaken: "It carries out activities or services itself"

Annual Submissions:

Year End	Income	Expenditure	Annual Return Received	Accounts Received	Latest Annual Reports and Accounts
31 Mar 2021	£15,449	£5,670	11 Oct 2021	Yes
31 Mar 2022	£4,394	£13,170	28 Oct 2022	Yes
31 Mar 2023	£25,454	£4,579	15 Nov 2023	Yes
31 Mar 2024	£26,665	£17,678	11 Nov 2024	Yes
31 Mar 2025	£43,401	£15,474	21 Nov 2025	Yes	Visit Charity's Website
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green . If an annual return is late, the box is red .

Income and Expenditure:

Charity Trustees:

First Name	Last Name
Khadija	Ali
Deborah	Ogg
Anita	Bellas
Bernadette	Hard
Jenny	Pople
Clare	Joy
Clare	Sargeant
Richard	Taylor
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises. If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

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