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Charity Details

 

Action for XP

SC045465Registered charity from 06 March 2015
2MB ZIP file, with green, blue and mono style logos
2MB ZIP file, with green, blue and mono style logos
Information about this charity:
Charity Information Operations Annual Submissions Income and Expenditure Charity Trustees
Notes:
This charity changed it's name from Teddington Trust (SCIO) to Action for XP. The charity was registered with the name Teddington Trust (SCIO) 6 March 2015 - 8 July 2022.
Charity Information:
Address Westfield
Cushnie
Alford
Aberdeenshire
Postcode AB33 8LP
Website www.actionforxp.org
Regulatory Type Standard
Object:
4 The organisation is established for charitable purposes only, and in particular, the objects are: 4.1 To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. 4.2 To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. 4.3 To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. 4.4 To promote education and awareness both within the XP community and externally within the professional community and general population. 4.5 The promotion of inclusivity, diversity, equality, and awareness, operationally and across our activities
Operations:
What the charity is set up to do and how it does this:
Action for XP is established for charitable purposes only, and in particular, the objects are: To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.
Charity Status: Active
Constitutional Form: SCIO (Scottish Charitable Incorporated Organisation)
Constitutional Form Date: 06 Mar 2015
Main Operating Location: Aberdeenshire
Number of Staff: 2
Number of Volunteers: 1-50
Purposes: "the advancement of education", "the advancement of health", "the promotion of equality and diversity", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"
Beneficiaries: "People with disabilities or health problems"
Types Of Activity Undertaken: "It makes grants, donations, loans, gifts or pensions to individuals", "It carries out activities or services itself"
Annual Submissions:
Year End Income Expenditure Annual Return Received Accounts Received Latest Annual Reports and Accounts
31 Mar 2022 £5,428 £6,149 17 Oct 2022 Yes
31 Mar 2023 £66,164 £23,839 20 Oct 2023 Yes
31 Mar 2024 £24,840 £11,635 20 Dec 2024 Yes
31 Mar 2025 £24,952 £54,859 24 Nov 2025 Yes Download
31 Mar 2026 No Annual Information due by 31 Dec 2026
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green   . If an annual return is late, the box is red   .
Income and Expenditure:
Charity Trustees:
First Name Last Name
Natalie Lorimer
Youssef Jebari
Wilbur Stewart
Rebecca Stewart
Richard Barlow
Nina Liu
Nicola Miller
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.
Copyright

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

© Office of the Scottish Charity Regulator 2006. Crown Database Right 2006.

The Scottish Charity Register ("The Register") is subject to Crown database right.

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When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

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