Charity Details

MECP2 Duplication UK

SC044781Registered charity from 31 March 2014

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Charity Information:

Address 34 Montgomerie Street
Ardrossan
North Ayrshire

Postcode KA22 8HP

Is the supplied address a principal office or a trustee address? Trustee - Charity Trustee

Website www.mecp2duplicationuk.org.uk

Regulatory Type Standard

Object:

1. The relief of those in need by reason of ill health & disability by providing non-medical support to UK patients, their families and carers with a connection to the condition. 2. The advancement of education and the promotion of diversity and equality by raising awareness of the condition and its treatment. 3. Advancing the education of the public and of the medical professions concerning the condition, the causes, prevention and treatment. 4. The advancement of health by supporting research projects worldwide with funds/donations to help find further treatment to improve quality of life.

Operations:

What the charity is set up to do and how it does this:

We provide support emotionally, financially and practically to families who are affected by MECP2 Duplication Syndrome, helping to reduce feelings of isolation and exclusion. We raise awareness of MECP2 Duplication Syndrome and work with other similar Charities and organisations worldwide. We promote and Support research into MECP2 Duplication Syndrome which could lead to treatments which could enhance the lives of those affected with the syndrome. A UK site is opening soon to trail a potential drug. Our Charity is growing and developing for the long term benefit of our Community. We hold Family Day Conferences for our families and they receive all the up to date information from the scientists and experts on the condition. We also provide grants and hold meet ups and fun days out to the zoo and other venues. At our meet ups, face to face support is very valuable and the families spending time together is wonderful for sharing advice, knowledge, tips and information.

Charity Status: Active

Constitutional Form: Unincorporated association

Constitutional Form Date: 31 Mar 2014

Main Operating Location: North Ayrshire

Number of Staff: 0

Number of Volunteers: 1-50

Purposes: "the advancement of education", "the advancement of health", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"

Beneficiaries: "Children or young people", "People with disabilities or health problems"

Types Of Activity Undertaken: "It makes grants, donations, loans, gifts or pensions to individuals", "It carries out activities or services itself"

Annual Submissions:

Year End	Income	Expenditure	Annual Return Received	Accounts Received	Latest Annual Reports and Accounts
31 Mar 2022	£1,921	£770	31 Dec 2022	Yes
31 Mar 2023	£1,319	£4,506	22 Dec 2023	Yes
31 Mar 2024	£15,500	£15,777	19 Dec 2024	Yes
31 Mar 2025	£9,978	£9,484	10 Dec 2025	Yes	Not published by OSCR
31 Mar 2026			No	Annual Information due by 31 Dec 2026
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green . If an annual return is late, the box is red .

Income and Expenditure:

Charity Trustees:

First Name	Last Name
No charity trustee information available
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises. If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

First Name

Last Name

No charity trustee information available

From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

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the names of a charity’s trustees (exemptions apply)
its annual report and full accounts, if submitted after 9 March 2026
(Accounts submitted prior to 9 March 2026 will be redacted, or may not be published, depending on the charity’s income level or legal form.)

These changes are designed to improve transparency across the charity sector in Scotland.

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Under section 23(1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, you have the right to request the following information directly from the charity:

a copy of the charity’s latest statement of accounts
a copy of the charity’s constitution

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