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Charity Details

 

IIH UK

SC043294Registered charity from 17 July 2012
2MB ZIP file, with green, blue and mono style logos
2MB ZIP file, with green, blue and mono style logos
Information about this charity:
Charity Information Operations Annual Submissions Income and Expenditure Charity Trustees
Charity Information:
The Name the Charity is Known By Idiopathic Intracranial Hypertension UK
Address 19 Woburn
Biddick Village
Washington
Tyne and Wear
Postcode NE38 7JX
Is the supplied address a principal office or a trustee address? Trustee - Charity Trustee
Website www.iih.org.uk
Regulatory Type Cross-Border
Link to Charity Commission https://www.gov.uk/government/organisations/charity-commission
Object:
The charity's objects (the objects) are: 1. To promote and protect the physical and mental health of sufferers of Idiopathic Intracranial Hypertension (here after referred to as IIH) through the provision of support, education and practical advice. 2. To advance the education of the public in general and particularly amongst scientists on the subject of IIH and to promote research for the public benefit on all aspects of that subject and to publish the useful results.
Operations:
Charity Status: Active
Constitutional Form: Unincorporated association
Constitutional Form Date: 17 Jul 2012
Main Operating Location: Outwith Scotland
Number of Staff: 0
Purposes: "the advancement of education", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"
Beneficiaries: "Children or young people", "Older People", "People with disabilities or health problems"
Types Of Activity Undertaken: "It makes grants, donations or gifts to organisations", "It carries out activities or services itself"
Annual Submissions:
Year End Income Expenditure Annual Return Received Accounts Received Latest Annual Reports and Accounts
30 Jun 2021 £26,814 £22,990 11 Feb 2022 Yes
30 Jun 2022 £35,455 £23,296 07 Feb 2023 Yes
30 Jun 2023 £34,341 £18,541 31 Mar 2024 Yes
30 Jun 2024 £17,119 £47,033 31 Mar 2025 Yes
30 Jun 2025 £19,470 £40,118 08 Apr 2026 Yes Download
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green   . If an annual return is late, the box is red   .
Income and Expenditure:
Charity Trustees:
First Name Last Name
MICHELLE WILLIAMSON
Betsy Clarke
Amanda Lisa Denton
Kerryann Chalmers-Worth
Clare Parr
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.
Copyright

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

© Office of the Scottish Charity Regulator 2006. Crown Database Right 2006.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

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When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

The Scottish Charity Register contains key information about a charity’s operations and finances. This includes:

  • the names of a charity’s trustees (exemptions apply)
  • its annual report and full accounts, if submitted after 9 March 2026
    (Accounts submitted prior to 9 March 2026 will be redacted, or may not be published, depending on the charity’s income level or legal form.)

These changes are designed to improve transparency across the charity sector in Scotland.

Please note that we accept no responsibility for the functionality, accuracy, or content of external websites. If you experience a technical issue with an external link, you should contact the charity directly.

Under section 23(1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, you have the right to request the following information directly from the charity:

  • a copy of the charity’s latest statement of accounts
  • a copy of the charity’s constitution
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