Charity Details

Ceased date: 05 May 2017

The Polycystic Kidney Disease Charity

SC038279Registered charity from 25 May 2007

Charity Information:

The Name the Charity is Known By PKD Charity

Address 91 Royal College Street
London

Postcode NW1 0SE

Website www.pkdcharity.org.uk

Regulatory Type Cross-Border

Link to Charity Commission https://www.gov.uk/government/organisations/charity-commission

Reason For Removal

Object:

The trustees shall hold the trust fund and its income upon trust to apply them for the following objects ("the objects") Object 1 - To relieve people affected by polycystic kidney disease, in particular by providing information, advice and support to patients and families affected by polycystic kidney disorder. Object 2 -To fund research into determining the causes of polycystic kidney disease and into discovering treatments and a cure for PKD. Research results to be available to the medical community and the public and to be reported on our web site and in our newsletter. Object 3 -To raise awareness of PKD, providing information to the public, the medical community and the media.

Operations:

Charity Status: Removed

Constitutional Form: Trust (founding document is a deed of trust) (other than educational endowment)

Constitutional Form Date: 25 May 2007

Main Operating Location: Outwith Scotland

Purposes: "the advancement of health", "the saving of lives", "the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage"

Beneficiaries: "Children or young people", "Older People", "People with disabilities or health problems"

Types Of Activity Undertaken: "It carries out activities or services itself"

Charity Trustees:

First Name	Last Name
No charity trustee information available
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises. If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

First Name

Last Name

No charity trustee information available

From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

The Scottish Charity Register contains key information about a charity’s operations and finances. This includes:

the names of a charity’s trustees (exemptions apply)
its annual report and full accounts, if submitted after 9 March 2026
(Accounts submitted prior to 9 March 2026 will be redacted, or may not be published, depending on the charity’s income level or legal form.)

These changes are designed to improve transparency across the charity sector in Scotland.

Please note that we accept no responsibility for the functionality, accuracy, or content of external websites. If you experience a technical issue with an external link, you should contact the charity directly.

Under section 23(1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, you have the right to request the following information directly from the charity:

a copy of the charity’s latest statement of accounts
a copy of the charity’s constitution

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