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Charity Details

 

PBC Foundation (UK) Limited

SC025619Registered charity from 04 December 1996
2MB ZIP file, with green, blue and mono style logos
2MB ZIP file, with green, blue and mono style logos
Charity Information:
Address Unit 1 Dunfermline Business Centre
Izatt Avenue
Dunfermline
Fife
Postcode KY11 3BZ
Regulatory Type Standard
Link to Companies House https://beta.companieshouse.gov.uk/
Object:
The relief of persons suffering from the condition known as Primary Biliary Cholangitis by the setting up and organisation of support groups for the benefit of such persons and their families and by the provision of information about the condition and its treatment.
Operations:
What the charity is set up to do and how it does this:
The PBC Foundation is the only UK organisation exclusively dedicated to providing support and information to those affected by Primary Biliary Cholangitis, a rare, progressive and autoimmune liver condition with no known cause or cure. We apply to grant making bodies and trusts, undertake fundraising and receive donations to help us provide information and support services to those living with the condition.
Charity Status: Active
Constitutional Form: Company (the charity is registered with Companies House)
Constitutional Form Date: 04 Dec 1996
Main Operating Location: City of Edinburgh
Number of Staff: 8
Number of Volunteers: 1-50
Purposes: "the advancement of education", "the advancement of health"
Beneficiaries: "People with disabilities or health problems"
Types Of Activity Undertaken: "It makes grants, donations or gifts to organisations", "It carries out activities or services itself"
Annual Submissions:
Year End Income Expenditure Annual Return Received Accounts Received Latest Annual Reports and Accounts
31 Dec 2021 £358,108 £328,595 21 Sept 2022 Yes
31 Dec 2022 £586,060 £447,690 05 Feb 2024 Yes
31 Dec 2023 £679,197 £775,841 30 Sept 2024 Yes
31 Dec 2024 £964,670 £852,784 07 Oct 2025 Yes Published accounts can be found on the Companies House website
31 Dec 2025 No No
If an annual return has been received on time (within nine months of the Year End Date), the 'Annual Return Received' box is green   . If an annual return is late, the box is red   .
Income and Expenditure:
Charity Trustees:
First Name Last Name
Rob Walton
James O'Connor
Ryan Macready
Feroz Sultan
Mark Dailey
Jane Thomas
From 09 March 2026, OSCR is required by law to publish the names of a charity’s trustees as part of its Scottish Charity Register entry. We are also required to publish each charity’s annual report and accounts as received from this date, which may include the names of certain individuals. The only exceptions to publication are where a charity or one of its charity trustees applies for this information to be excluded, and OSCR is satisfied that publishing it would jeopardise the safety or security of a person or premises.

If the charity trustee information on a Register entry appears blank, this may mean that an exemption applies or that the charity has not yet provided the required details to OSCR. Supplying this information will become mandatory as part of future annual submissions.
Copyright

From 30 June 2025, OSCR began collecting charity trustee information through OSCR Online. Providing this information is a legal requirement for all charities. The names of trustees will be published on the Scottish Charity Register from early 2026 to promote transparency and strengthen public trust in the sector.

© Office of the Scottish Charity Regulator 2006. Crown Database Right 2006.

The Scottish Charity Register ("The Register") is subject to Crown database right.

The Scottish Charity Register is licenced under the Open Government Licence v3.0.

Open Government Licence logo

When you use this information under the OGL, you should include the following attribution: © Crown Copyright and database right 2020. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0.

Charity accounts and constitution – what information do we publish?

The Scottish Charity Register contains key information about a charity’s operations and finances. This includes:

  • the names of a charity’s trustees (exemptions apply)
  • its annual report and full accounts, if submitted after 9 March 2026
    (Accounts submitted prior to 9 March 2026 will be redacted, or may not be published, depending on the charity’s income level or legal form.)

These changes are designed to improve transparency across the charity sector in Scotland.

Please note that we accept no responsibility for the functionality, accuracy, or content of external websites. If you experience a technical issue with an external link, you should contact the charity directly.

Under section 23(1)(a) and (b) of the Charities and Trustee Investment (Scotland) Act 2005, you have the right to request the following information directly from the charity:

  • a copy of the charity’s latest statement of accounts
  • a copy of the charity’s constitution
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